Our daughter is getting the treatment that u always wanted
0017 December - 0018 January
Created by kirsty 6 years ago
WELL ALLAN WERE DO I START IM SHARING THIS NEWS WITH U FIRST BRFORE ANYONE BECAUSE I NO HOW HAPPY U ARE GOING TO B WEN I TELL U THIS AS U KNOW OUR DEMI LOUISE JEAN MURE WAS BORN WITH THAT HORRIBLE DIESEAS THAT U ALWAYS BLAMED ME FOR AND COURTNEYS DAD FOR U ALWAYS MADE AN ISSUE ABOUT IT AND U NO WE WERE TOLD THAT IT B TEN YEARS OLD BEFORE SHE COULD POSSIBLY GET TREATMENT FOR IV LIVED WITH THE GUILT OF THIS SINCE SHE WAS BORN AND ITS BEEN WORSE THE LAST 5 YEARS SINCE I HOT GOT RID OF IT THINKING WHAT IS SHE DOSENT GET RID WELL SHES IS KNOW 14 YEARS OLD ITS 13/12/17 AND IV HAD HER FOR SCREENING FOR THE NEW TRIAL THERE WAS 3 PPL TO GET PICKED FROM UK OUT OF 150 KIDS THEY HAVE NEVER TESTED IT JUST LIKE WEN I GOT MY TREATMENT WE WERENT SURE IF IT WOULD WORK WELL HERE IS THE BIG NEWS UR FIRST TO FIND OUT WELL I GOT THE PHN CALL TODAY 13/12/17 AT 16:30 AND I WAS SO SHOCKED WHAT THE RESEARCH TEAM TOLD ME SHE GOT THE PLACE ON THE TRIAL FOR THE NEW DRUG TO HOPEFULLY GET HER CLEAR OR THE THING THATS HUNTED ME FOR YEARS SO SHE STARTS HER TREATMENT ON THE 8TH OF JANUARY I COULDN'T THANK THE GIRL ON THE PHN ENOUGH SHE HAS MADE MY DAY MY XMAS SO THATS ALL MY CHRISTMAS IN ONE I'M SITTING HERE IN TEARS THIS IS ALL U EVER WANTED FOR HER TO HAVE THE TREATMENT I NO U HATED ME FOR PASSING IT ON TO HER IV HATED MYSELF FOR THE LAST 14 YEARS AND THE HATE AND HURT AND STUFF U WOULD SAY TO ME FOR PASSING IT TO HER SO I JUST THOUGHT U SHOULD B FIRST TO NO OVER ANYONE IV NOT EVEN TOLD HER YEAR SO MY NEXT STEP IS HOPING THAT THE TREATMENT WORKS HER TREATMENT ISENT AS LONG AS MUNES WAS AS U NO IT WSS 48 WEEKS FOR MINE HRES IS 8 WEEKS SO FINGERS CROSSED THAT IT WORKS SO ILL LET U NOW HOW SHE GETS ON U SLEEP TIGHT AND WATCH OVER HER AS SHE GOSE THROUGH THIS TREATMENT LOVE AND MISS U SO SO MUCH U WILL ALWSYS B MY WEE MAN THE RHINO GBNF